The EIP Institute are honored to have WellChild as the nominated Charity Partner for the 2017 Conference. All conference delegates are encouraged to make a voluntary donation to help support WellChild’s work.
There are thousands of children and young people living with a serious illness or complex health condition in the UK. WellChild is the national charity working to ensure the best possible care and support for all these children, young people and their families wherever they are and whenever they need it. To donate via text, please text to 70070 as follows: EIPC 17 £5. This will send a £5 donation directly to WellChild. The amount donated can be changed depending on how much you want to give. You can donate in eight currencies: British Pounds, US dollars, Euros, Hong Kong dollars, Singapore dollars, Canadian dollars, UAE Dirham, South African rand and Australian dollars.
There are thousands of children and young people living with a serious illness or complex health condition in the UK. WellChild is the national charity working to ensure the best possible care and support for all these children, young people and their families wherever they are and whenever they need it. This is done by providing a range of programmes that make a huge impact on the lives of these families. These include:
WellChild Children’s Nurses: Central to the programmes on offer is the growing network of WellChild Children’s Nurses who work across the UK in community and hospital settings. They provide essential and individualised care and support to many of these children and young people, including those who are technology dependent. A crucial part of their keyworker role is focused on enabling early discharge from hospital so that care can be provided at home. Supporting these families through the process helps to reduce the practical, emotional and financial impact they often experience.
WellChild Projects: WellChild has funded countless initiatives to improve the lives of seriously ill children, young people and their families. This includes a range of projects to help create a better understanding of how care is provided at home and give parents and carers access to the information they need. One example of this is the Medicines for Children website developed in partnership with the Royal College of Paediatrics and Child Health and the Neonatal and Paediatric Pharmacists Group. This free, practical and reliable resource on over 100 children’s medicines provides useful information for parents through leaflets and videos. Another practical resource is ‘My Child Is In Pain’. Developed at the University of Central Lancashire with parents this interactive website gives advice on how to manage pain after a child has had day surgery.
WellChild Family Tree: The WellChild Family Tree provides families of seriously ill children with a safe place they can chat to other parents and carers and support each other online via a closed Facebook group and also face-to-face through local ‘branches’. Dedicated support to children and young people with the rare condition Wolfram Syndrome and their families is also provided through the Wolfram Syndrome Family Coordinator who works closely with the specialist team at Birmingham Children’s Hospital.
WellChild Helping Hands: Caring for a seriously ill child or young person with complex care needs at home can, at times, be challenging. Jobs such as decorating a child’s bedroom or making the garden a safe play space often get pushed to the bottom of the priorities list as they focus on caring for their child’s complex needs. WellChild Helping Hands is a unique scheme which works across the UK with the support of teams of volunteers from local companies and organisations, to tackle these simple but essential home and garden improvements.