A Peer2Peer Educational Approach to Improve Everyday Practice
Education remains the number one tool for EIP in making a huge impact on the way child healthcare professions advise and treat the children and families they support. By providing the latest advice and information to just one pediatrician EIP can improve healthcare for the thousands of children that HCP sees each year. Our targeted educational campaigns allow EIP to make a positive and measurable impact in the areas that need it most and we are multiplying this impact out across Europe and around the world.
The Spot the Early Signs Education Program
Excellence in Paediatrics (EIP) believes that working directly with paediatricians is the only way to improve the identification, treatment and referral rates of children with a wide range of disorders and conditions. Pediatricians and family doctors are likely to be the first healthcare professionals to observe symptoms, and it is important to help these front-line clinicians suspect, diagnose, and refer patients.
The program aims to fight under-diagnosed or late-diagnosed conditions for which treatments are available and where early detection and early treatment could make a significant difference in the condition's development, the quality of life and the survival of patients.
By providing education and resources to EIP’s members, not only can they prepare themselves to spot the signs but crucially share materials (eLearnings, lectures, articles and webinars) with their colleagues, both online and face-to-face.
The Program is already live and initially targeted at Spotting the Signs of Metabolic Disorders, but will soon be expanded to include more conditions.
Spot the Early Signs of Metabolic Disorders
Educational Portal on Lysosomal Storage Disorders
The portal with over 180 pages of educational content serves as: (1) online course to train frontline paediatricians (2) a point of reference and information for the conditions (3) collaboration platform of a network of HCPs trained to Spot the Early Signs of Metabolic Disorders. Education content includes chapters on spotting the signs of Lysosomal Storage Disorders and specifically of Gaucher, Fabry and MPS diseases. Portal visitors are encouraged to contribute in content and make suggestions on additions, further readings and also to report cases from their day-day practice.
Visit the portal here: metabolic.diseases.spot-early-signs.org
Educate The Educators Webinars on Lysosomal Storage Disorders
Educate the educators sessions in the form of webinars targeting: (1) to train volunteers, and (2) to train all frontline paediatricians interested to volunteer for the program. Four webinars will be organised in 2017. Webinars organised already are:
> Spotting the Signs of Lysosomal Storage Disorders & Training Your Colleagues on What to Look for.
Presented by Uma Ramaswami FRCPCH, MD, Consultant in Inherited Metabolic Disorders, Lysosomal Disorders Unit, Institute of Immunity and Transplantation, Royal Free London NHS Foundation Trust.
> The Mucopolysaccharidoses: A Primer for Pediatricians.
Presented by Joseph Muenzer, MD, PhD, Professor of Pediatrics and Genetics, Division of Genetics and Metabolism, Department of Pediatrics, University of North Carolina.
Watch the recorded webinar here: https://youtu.be/5CEKEmOPHK0
Education Materials on LSDs
EIP has prepared a number of educational videos available to all child healthcare professionals for them to understand in depth Lysosomal Storage Disorders including the diseases background, the genetics and the mechanisms, the manifestations, and the available treatments. Webcasts are:
> When Common Complaints are the Signs of Lysosomal Storage Diseases – Identifying LSDs
Presented by Amel Karaa, Clinical Director, Lysosomal Storage Diseases Program Massachusetts General Hospital & Instructor of Medicine Harvard Medical School
> The Pediatrician’s Role in Identifying and Understanding Gaucher Disease
Presented by Pramod Mistry, MD, PhD, FRCP, Professor of Medicine and Director of the Yale Lysosomal Disease Center and Gaucher Disease Treatment.
> The Physician's role in identifying and understanding Fabry Disease
Presented by Robert J. Hopkin, MD, Associate Professor of Clinical Pediatrics at Cincinnati Children's Hospital Medical Center, University of Cincinnati College of Medicine
Watch the videos here: http://metabolic.diseases.spot-early-signs.org/physician_education_videos
Program Volunteers and Peer-2-Peer Education
EIP aims to gradually built a network of 1,000 HCPs who will volunteer either: (1) to speak at a webinar (2) to organise a briefing or a lecture in their facility (2) to share materials with their colleagues. The program targets to educate 6,000 frontline pediatricians, through:
> 20 Live Lectures / Webinars will be delivered by 20 experts across Europe in National Languages
> 30 Facility Lectures / Briefings
> 20 recorded webinars to watch online on-demand through the program's portal and EIP's video library